Catheroo, posted about her dear friend, Lynette, and the battle she and her husband are facing to save their son, Sebastian. Sebastian has a rare genetic disease called Severe Combined Immunodeficiency (SCID). This disease means that Sebastian basically does not have an immune system and common illnesses which we recover from quickly could prove fatal for him.
There is no cure for SCID, but there are some promising treatments. Sebastian has been invited to take part in a clinical trial being conducted in Italy. This spring, he and his family will relocate from their Bay Area home to Milan, Italy, where they will live for 6 months while Sebastian is undergoing treatment. While much of the treatment costs will be covered by medical grants, a fund has also been set up to help cover the additional costs they will incur while overseas.
If you are interested in learning more about Sebastian’s story, please visit Sebastian’s Space on the web. You can help out by making a donation to Sebastian’s fund, posting a link to his space on your blog, or by sending a supportive comment to his parents. I’m sure they are approaching this relocation and clinical trial with both fear and hope, so let’s send a little love their way!
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