Our little friend Parker is doing well in Milan. Read about him at his blog (see the sidebar). He’s received his gene therapy cells and now is waiting.
Here’s his latest post: http://scidada.blogspot.com/2007/05/ac-milan-are-european-champions.html
-
SCID Stuff
A place for everything SCID related. SCID is Severe Combined Immunodeficiency. It's often referred to as the Bubble Boy Syndrome. Labels
-
What is SCID?
Severe combined immunodeficiency disease is the most serious primary immunodeficiency disorder. The defining characteristic of SCID is the absence of T cells and, as a result, lack of B cell function as well. Unless these defects are corrected the child will die of opportunistic infections before their first or second birthday. SCID can be caused by several different genetic defects, most of which are hereditary. In the past, children with this disorder were kept in strict isolation, sometimes in a plastic isolator or "bubble". Bubbles are no longer used as a standard of care, but the name remains a part of the history of SCID. -
Most Recent Posts
- Cognitive and behavioural abnormalities in children following haematopoietic stem cell transplantation for severe congenital immunodeficiencies
- Local Habitat for Humanity group turns sod on new home for Centreville family, with hopes to finish construction by the holidays
- Enzon Pharma Risks Balanced
- Bubble baby comes home
- CSL to buy Talecris Biotherapeutics for $3.1 billion
- Why Gene Therapy Caused Leukemia In Some ‘Boy In The Bubble Syndrome’ Patients
- Insertional mutagenesis combined with acquired somatic mutations causes leukemogenesis following gene therapy of SCID-X1 patients
- Baby battling disease gets new hope
- Construction of house will take into consideration the special needs of the couple’s two-year-old daughter
- Baby bubbly despite ‘bubble boy’ disease
Archives
- September 2008 (2)
- August 2008 (5)
- July 2008 (3)
- June 2008 (5)
- May 2008 (11)
- April 2008 (10)
- March 2008 (15)
- February 2008 (7)
- January 2008 (11)
- December 2007 (18)
- November 2007 (11)
- October 2007 (14)
- September 2007 (9)
- August 2007 (12)
- July 2007 (7)
- June 2007 (11)
- May 2007 (15)
- April 2007 (9)
- March 2007 (11)
- February 2007 (9)
- January 2007 (13)
- December 2006 (15)
- November 2006 (12)
- October 2006 (5)
- August 2006 (2)
- May 2006 (1)
- July 2002 (1)
- September 2001 (1)
Categories
- B&B (4)
- Gene Therapy (47)
- General Immunology (6)
- IVIG (23)
- Newborn Screening (21)
- Patient Support (14)
- Personal stories in the news (120)
- Related Topics (33)
- Research (44)
- SCID Initiative (1)
Blogroll
Links
- Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children
- Anthony James Foundation
- Donate now to the SCID Initiative
- Genetics Home Reference - Newborn Screening
- Immune Deficiency Foundation
- Learning About Severe Combined Immunodeficiency
- Newborn Screening Policies by State
- SCID Conference 2008
- scid.net
-
Thanks for Stopping By:
Disclaimer: News articles come and go on the internet. When you find an interesting article and link to it, the link is dead in six months and the article is gone. I've copied many news articles here. I've included the information on the writer and linked back to the original publication. My intent is never to take anyone else's work as my own. My intent is to keep a repository of all the articles I find to be interesting. Many of these articles bring hope and encouragement to a family with a SCID child. Families with this disease are so rare, and they need to see that they are not alone in this struggle to keep their child alive. I hope this page is helpful to anyone with a family member or friend with any form of SCID. -
RSS Feed for SCIDstuff
-
-
-
-
Zimbio
RSS Feed for SCIDstuff
Theme: Contempt by Vault9.
Blog at WordPress.com.
